The Appointment

Well we went. We were there for an hour and a half! In a hot humid room with a profound amount of toys that scared me in the way that they were organized about the room. A huge ball that Noah kept flopping on top of and rolling around on until yip, you guess it he smacked his body into the shelves in the room where toys were stacked 6 levels high and scratched himself. That part did not make sense to me for being a childrens facility. . . oh well thats a mute point right now.

We talked to the post-doc that was gatherin his assesment. I did not have all of the reports from Noah's psychologist with me despite my phone calls and emails to him for the last two weeks. We still have no clue as to if he is going to be officially diagnosed with Aspergers or ADHD or both. I know nothing. Not even an inkling of what may be , if anything is going on. All I know is that since we started with our sitter Mrs. B he has remarkably improved all around. Both boys have. I cant say enough as to how great she has been for them. I am sure she is exhausted by the end of the day but I pray that she just keeps on going with whatever it is she is doing because its working. Man I wish I had her skill!

Anyway we are back into the waiting game as to getting diagnosis or outlook on his behaviors. Back onto waiting until the end of September. In the meantime we have school transitioning to get him ready for and that in of itself just may be interesting. I am nervous as heck to get him in there and on a bus but I know that he will have eyes looking out for him all around. God I hope he has eyes all around looking out for him! I love that liitle guy so much I just dont want him to get lost or beat around by anybody. School should be an exciting time for him but its a scary and nerving time for me! and dad!

Broken Links

Do you ever get frustrated when you are trying to research some information and click on links only to have a long download process that only results in a broken link message appearing on your screen? Well, that is just about how I feel with trying to contact Noahs doctors and maintain some level of progress for his diagnosis/treatment plan. It is infuriatingly frustrating to deal with. I dont know who is worst to deal with sometimes trying to call all of the doctors, mail out all of the applications, and wait to hear back from them OR listening to Noahs repetitive questions and incoherent conversations about lego Wii games over and over again. . . . . UGH!

So things have been pretty busy over the past few weeks with work so I have not had the time to settle in and blog about the latest happenings. I am sure you can pretty much guess the frustrations I have encountered this past week with his doctors. Yes, I am still struggling with his diagnosis it just is not settling well with me right now. I can not get in touch with any of his occupational therapists, speech therapist, get return phone calls from his psychologist, etc. HOWEVER I did get a surprise phone call from the Childrens Autism Center. After 5 months of waiting. . . HE GOT IN!!!! So this Friday I am taking half of the day off of work to march him on down there for the first of what could be four appointments to assess and begin treatment pathways for him.

I am hoping that I will also know more on Friday that can give me the second opinion that I need as to does he, or does he not have Aspergers? I feel as though he just walks such a fine line with it that I am not swayed one way or the other. Then, he will do something off kilter that just brings me back to thinking okay maybe he does have something going on. It is so challenging to interpret just what it is that may be going on with him because it is a spectrum disorder, or so they have told me as I battle my questioning of his diagnosis. Things have been stable for him lately so maybe that is the mirage that has been pulled over my head lately. There are just so may maybe's right now I need to just wait and see what happens on Friday.