Sunday, July 18, 2010

Broken Links

Do you ever get frustrated when you are trying to research some information and click on links only to have a long download process that only results in a broken link message appearing on your screen? Well, that is just about how I feel with trying to contact Noahs doctors and maintain some level of progress for his diagnosis/treatment plan. It is infuriatingly frustrating to deal with. I dont know who is worst to deal with sometimes trying to call all of the doctors, mail out all of the applications, and wait to hear back from them OR listening to Noahs repetitive questions and incoherent conversations about lego Wii games over and over again. . . . . UGH!

So things have been pretty busy over the past few weeks with work so I have not had the time to settle in and blog about the latest happenings. I am sure you can pretty much guess the frustrations I have encountered this past week with his doctors. Yes, I am still struggling with his diagnosis it just is not settling well with me right now. I can not get in touch with any of his occupational therapists, speech therapist, get return phone calls from his psychologist, etc. HOWEVER I did get a surprise phone call from the Childrens Autism Center. After 5 months of waiting. . . HE GOT IN!!!! So this Friday I am taking half of the day off of work to march him on down there for the first of what could be four appointments to assess and begin treatment pathways for him.

I am hoping that I will also know more on Friday that can give me the second opinion that I need as to does he, or does he not have Aspergers? I feel as though he just walks such a fine line with it that I am not swayed one way or the other. Then, he will do something off kilter that just brings me back to thinking okay maybe he does have something going on. It is so challenging to interpret just what it is that may be going on with him because it is a spectrum disorder, or so they have told me as I battle my questioning of his diagnosis. Things have been stable for him lately so maybe that is the mirage that has been pulled over my head lately. There are just so may maybe's right now I need to just wait and see what happens on Friday.

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